COST Action “Harmonizing clinical care and research on adrenal tumours in European countries” (HARMONISATION) CA20122

Kastelan, Darko and Velkoska Nakova, Valentina (2021) COST Action “Harmonizing clinical care and research on adrenal tumours in European countries” (HARMONISATION) CA20122. [Project]

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Abstract

Adrenal tumours affect more than 3% of the population aged > 50 years, and their absolute prevalence is increasing due to population aging. Most of these tumours are benign and hormonally inactive. However, 2-10% of them are at risk of malignancy, and 20-40% present hormone over-secretion, leading to significant morbidity.
Management of adrenal tumours is quite heterogeneous, and this leads to substantial inequality in patient care throughout Europe. In this context, the goal of HARMONISATION is to constitute a multidisciplinary
network to harmonize clinical care and research on adrenal tumours throughout Europe. Our focus will be on COST Inclusiveness Target Countries (ITCs). In addition, this collaborative network will establish a modern framework to develop a new generation of real-time and real-life randomized clinical trials, which will be federated and registry-based. For this purpose, HARMONISATION will be organized in five Working Groups: 1. Harmonizing clinical practice for adrenal tumours; 2. Harmonizing adrenal tumour research and -omics practice; 3. Harmonizing Information Technology (IT)/Artificial Intelligence (AI) tools towards a
standardized registry; 4. Harmonizing the ethical and legal framework required for federated European trials; and 5. Communication, dissemination, and inclusiveness.
The successful execution of HARMONISATION’s goals is guaranteed by the collaboration of clinicians,
researchers, and experts from other relevant fields, including artificial intelligence, data science data
protection, legal and ethical issues, and patients’ representatives.

Item Type:	Project
Subjects:	Medical and Health Sciences > Clinical medicine
Divisions:	Faculty of Medical Science
Depositing User:	Valentina Velkovska
Date Deposited:	09 Feb 2024 12:08
Last Modified:	09 Feb 2024 12:08
URI:	https://eprints.ugd.edu.mk/id/eprint/33504

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